I Have Calmed Down.
The last couple of weeks have been very challenging for my family. Essentially, our Beloved Boy exhibited a behavior that, though normal for autistic kids, and indeed young kids in general, caused him to be suspended from school twice. The second suspension, IMO, was in large part a failure of the assistants to watch him properly, because the new safety protocols discussed in the IEP meeting were not implemented!
After the first suspension, yes there was an IEP meeting. Many, many things were suggested. After the second suspension I called our state's
Autism Society. Many, many,
many things were suggested. I felt overwhelmed and buried in information. My reflex when overwhelmed is to withdraw, and for the past few days I've done just that. My emotions and my worries have been so raw, so omnipresent, that I haven't dared write about them lest I, I dunno, blow up the internet or something. Or just collapse into tears at the keyboard, more likely.
What I did instead was to read a lot-- for pleasure, first of all. I discovered a
blog I really love, and I went back to reading
Trick Or Treatment, just to get my mind off our troubles and onto other things. Then I dipped my toes into the material from the Autism Society, and bit by bit, I've been absorbing it. I can handle this. There are specific, non-infinite things I can do to help B, and us.
In addition, the kindness and compassion of passing acquaintances of mine and B's have proven a deep well of resource. Chief among the things the county autism specialist said we need to do for him was to get him involved in sports. Me, I do not enjoy sports, except for solitary things like track and karate. But I needed to stretch beyond that comfort zone for my kid, and it made my skin hurt. Well, we walk a mile at a local metro parks recreation center every day, and one of the older employees there is always pushing the kids to sign up for the teams. He asked how old B was, and I said five, but-- he's special ed-- and I was going to elaborate on how B has difficulty absorbing rules, and how he loves to kick against authority and do his own thing, and, and, and... But the gentleman just smiled and shook his head and said, "I deal with 'em all the time, we've got lots of 'em in the program, and at that age, you can't never even tell one from another." I nearly collapsed in relief. THIS is the attitude I wanted to see in the school counselor! At age five, they're ALL uncoordinated and can't tell their feet from their hands half the time, and only hear half of what grownups tell 'em and can't follow instructions!!!! THEY'RE FIVE!!!!!!!!!!!!!
(*pant, gasp, heave*)
So, just that little bit of acceptance after the week of "OMG SAFETY PRECAUTIONS" made me feel life was good, and not just a constant fight. It helped So. Much. I just want to give a huge hug to everybody, everywhere who treats differences as normal, not as diseases.
Another thing that happened was that B noticed one of the ballet instructors leaving the center, and he, little INCREDIBLY GIFTED FACE-RECOGNIZER that he is (he didn't get it from me, that's for certain!) gave her a grin and said, "How come you're not in your room?" meaning the dance room. She caught on even before I did, and grinned back, "Because class is over and I'm going home." It took me a beat to realize she was the Age 5-6 instructor, and I ran after her. "Do you know anyone who teaches dance who will take a high-functioning autistic boy in class?" Again, she grinned, and informed me she works in a day care and knows lots and lots about autistic kids, and at age five none of them really know how to do the steps anyway, and that we should feel welcome to sign up for her next class in January, and that she'll bring us a registration form on Monday! Again, the burden lifted. Again, the knowledge that people out there will help us make things better.
I guess I had thought school would
ease the parental overwhelmedness I've felt for the past five years in raising my wonderful but like-unto-having-five-kids boy. It hasn't worked out that way. School has led to even more crushing issues and EVEN MORE having to advocate for B and stay on top of things. And you know what? I think I can deal with that. Step by step, little by little, and OMG REMEMBERING we're not alone in this, I can deal.
To cap off this week, some wonderful, awesome, close friends of ours offered to babysit last night, overnight. I love these friends. They are so wonderful. And awesome. And I feel SO. MUCH. BETTER. Just from having a night of rest. A single night.
I need to remember this. :)
Also, I am told my son ate their son's entire stack of cough drops, because B is MAD FOR COUGH DROPS! :)
Also also, that he was given a frosted Pop-Tart for breakfast. He took it and examined it and asked, "Why am I getting a
frosted Pop-Tart?" My friend replied, "Because that's all we have." B ate it, THEN announced, "Mommy says I can only have the non-frosted ones." ROFLOL!!! The kid is honest, yet pragmatic!
Last but not least, I want to thank hugely all the commenters who shared helpful personal stories and perspective. It really, really meant a lot to us. *HUGS* Yet another reminder (I seem to need them way too often-- what, do I think it's
Night Of the Comet out here?) that we are not alone, and parents can be there for each other.